Looking beyond the invisible symptoms on World MS Day

For World MS Day Canadians should take a moment to think about the invisible symptoms of MS

You wouldn’t necessarily know it by looking at them, but on average 11 Canadians are diagnosed with multiple sclerosis (MS) every day.

For many, early symptoms are nearly invisible – fatigue, weakness, lack of coordination, vision or bladder problems. Symptoms are often overlooked by even those living with early stages of the disease. Symptoms can also be overlooked by unsuspecting friends, family or colleagues, even after diagnosis which, in some cases, can take years.

READ MORE: MS Walk is Canada’s Duty

Today is World MS Day and this year we’re asking Canadians to take a moment to think about the invisible symptoms of MS and the unseen impact MS can have on a person’s quality of life.

Many individuals affected by MS battle invisible symptoms, including challenges with mental health, numbness, dizziness, weather sensitivity, vision loss, debilitating fatigue and more.

Chances are, they are also living with the stigma of having MS symptoms and wrong assumptions about them. They are often mistaken for being lazy, clumsy or even impaired. Just because someone looks okay on the outside doesn’t mean they aren’t struggling on the inside.

MS is an unpredictable and often disabling disease of the central nervous system. One day your body behaves ordinarily, the next it refuses to listen to you.

There’s no warning. There’s no sign that something has changed from one day to the next, making it difficult for people living without the disease to understand swings in a person’s physical or mental health. The unpredictable and episodic yet progressive nature of MS makes it challenging to maintain financial security and navigate health and community support systems including access to treatments, care, and appropriate housing.

Employment is a key factor in maintaining financial security. The average unemployment rate for people living with MS is 60 percent. People with MS want to work and struggle to continue to work, often because of issues related to lack of flexibility and accommodation.

Fortunately, we’ve come a long way in the last 20 years thanks to the generosity of donors who contributed to help fund critical MS research. In 1998, there were only three types of MS treatments available. Today there are 14 disease modifying therapies approved in Canada for people with relapsing forms of MS to consider as part of their treatment and management of MS.

In the 1990s, a woman living with MS (women are three times more likely to be diagnosed with MS than men) would have had no treatment options and been advised not to have a family, not to work or do any strenuous activity.

She would have felt very insecure because her disease was invisible and not understood by employers, and she would have lived in fear of it getting worse and being alone. Today, a woman living with MS has multiple treatment options, may be told it is ok to continue to work and have a family if she chooses. We’ve come a long way in MS awareness and treatment, but we have a long way still to go.

Over 77,000 Canadians are currently living with MS, one of the highest rates in the world. Let’s work collectively to eradicate stigma around MS and make it easier for individuals affected by the disease to share their stories and experiences with the world.

Tania Vrionis is the President, Alberta & Northwest Territories and BC & Yukon Divisions of the MS Society of Canada.

Just Posted

EDITORIAL: Post-grad years are your time

Editor Grace Kennedy shares a few words for this year’s high school grads

PHOTOS: Sasquatch Days about ‘being proud of being Sts’ailes’

The joint event between Harrison and Sts’ailes returned to the village for its eighth year

‘This was my baby’: Music teacher to retire after 29 years at Kent Elementary

Brenda Di Rezze will be saying goodbye to her music room at the end of this school year

LETTER: Harrison needs trees, not a new parking lot

Harrison resident Janne Perrin reminds council that trees are important too

UPDATE: Two young Chilliwack men facing at least five years jail for armed robbery

Darius Commodore and Jaimal Mclaren face 13 charges in Mission/Agassiz incident involving police dog

VIDEO: Reading splashes into Agassiz’s Ferny Coombe Pool

The Agassiz Library held its annual Reading in the Pool event Friday, June 14

Bombers down B.C. Lions 33-23 in season opener

Former Lion Andrew Harris leads Winnipeg with 148 rushing yards

Northern B.C. family remembers murdered Indigenous woman with memorial walk

Still no closure for Ramona Wilson’s family 25 years later

Pride flag taken down by Township of Langley

Woman said she was told it was removed from her front yard because of a complaint

B.C. university to offer mentorship program for former youth in care

Students using the provincial tuition waiver program will soon be able to form a community at KPU

Cyclists competing in one of the toughest bike races on the planet pass through Fernie

Divide riders looking strong as they finish first leg of 4160 km race

You might not know these B.C. records are public

Hired a lawyer to file a civil claim? Those are published online

B.C. bus driver loses case to get job back after texting while driving full bus

An arbitator ruled that Tim Wesman’s phone usage was a “a reckless disregard for public safety”

Revamped B.C. Lions set to battle veteran Winnipeg Blue Bombers

The Lions’ first test of the season will be a big one

Most Read